Related Sites!
Please visit these sites for more information!
The SMA Trust is a UK charity raising substantial funds and channelling money into research and the alleviation of Spinal Muscular Atrophy.
Welcome to SMA Support! We are an all-volunteer, non-profit, 501(c)(3) tax-exempt organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the devastating genetic disease called Spinal Muscular Atrophy.
FightSMA is an international 501(c)(3) organization committed to accelerating a cure for spinal muscular atrophy (SMA), which kills more babies than any other genetic disease. A baby is born every day with SMA. SMA is incurable, untreatable, fatal and underfunded
Families of Spinal Muscular Atrophy - a comprehensive, on-line information and resource center. We invite you to explore our pages and reach out to our 'extended family.'
The Mission of the Jennifer Trust for Spinal Muscular Atrophy (JTSMA) is to be there for everyone affected by or involved with Spinal Muscular Atrophy (SMA), providing support and information, and investing in research. The JTSMA is the only British organisation dedicated to providing support, care, information and the funding of research into SMA.
This site has been established to support families, individuals, to provide support and information for everyone affected by or involved with Spinal Muscular Atrophy
My name is Brenda and I work with MJ. I learned to quilt a few years ago and have since made MJ too many quilts. We started sending them to her buddies who also have SMA, Spinal Muscular Atrophy
The Association of Genetic Support of Australasia Inc. (AGSA)
AGSA facilitates support for those affected directly or indirectly by genetic conditions throughout Australasia.
The Baby Emma Foundation - Australia
The Baby Emma Foundation was established in June 2004 by Andrew and Sarah Parke, in honour of their daughter Emma Rose Molly. It's aim is to raise money towards medical research for children, in particular funds will be dedicated to special projects at the Royal Children's Hospital in Melbourne.
Novita Children's Services- South Australia
Novita - providing therapy, equipment and home support services to South Australian children and young people with physical disabilities.
Our Mission: To optimise the quality of life for poeple with disabilities,particulary those with neuromuscular and other neurological disorders.
This group is the Australian arm of the U.S. Coles Quilts group. Although the group was primarily set up to make quilts for children suffering from SMA, we also make quilts for any children suffering from a critical illness. We also make quilts for the major Childrens Hospitals in each state to aid in their yearly fundraising efforts. For now the only squares accepted are those that are cross-stitched on aida or even weave. We are a totally volunteer group who give our time and talents freely to try to make the life of an ill child just a tiny bit better.
We would like to acknowledge the other SMA sites and organizations and the fantastic job they do in giving invaluable information to families, help in increasing the awarenes of SMA and help in raising funds for much needed research.
We realize that we are only a part of a broader community with a common goal to offer support and understanding of this disease.
Due to the nature and purpose of our site, we have this links page so others can gain access to the wealth of information others have so painstakingly put together for us all.
If you are a web administrator of such a site and would like to add our link and have your link on our page, then please contact admin@smaaustralia.com