What's New?
The SMA Annual General Meeting
Will be held on Saturday 22nd of September 2007
Time : 2:00 pm with a early 1:30 pm start to introduce those to the use of the Conference Room.
The Meeting will be held online via our conference room to allow as many members as possible to attend.
We hope to see you there.
Jul 2006
Fundraising Event
On October 7th 2006 We held a Dinner and Show Fundraising Event at The Mulgrave Country Club
In Mulgrave,Melbourne,Victoria
'Jan 2006
Officially Registered Charity!
The SMAAA is now a Registered Non Profit Organistation with the ATO and has full tax exemption and DGR Status!
This is a great achievement. Many thanks to the board members for all their efforts in making this possible! Special thanks goes to Ross and Julie.
All donations of $2 and over, made to the SMAAA are now tax deductable in Australia!
'Jan 2006
New Brochure!
We now have a brochure that can be downloaded. It is in PDF format.
'Jan 2006
Website Upgrade!
The website has completed its hosting upgrade and things seem to be working smoothly. Fingers Crossed.
'May 23rd 2006
Sadly our President and Founder, Ross Brownlaw, was taken from us in a tragic accident! He was just turning into the driveway of his farm when he was hit by a Double-B Truck and killed instantly. Here is to Ross for all he acomplished in establishing this website and the Association in aid to help others When He and Julie were looking after little Monty and couldn't find much here in Australia regarding SMA.
'March 2006
New Donations Facilty
We now have a new donation facilty through www.ourcommunity.com.au
You can now dontate Here
'Feb 2006
Logan's Story - U.S.A
Follow Logan and his family's story as they live and deal with SMA through their weekly Peanut Report.
February 2006
Resources Pages
We now have resource pages for Victoria and NSW available. We have one for Queensland which will be appearing shortly.
'February 2006
Guestbook
For those that visit the Guestbook - you may have noticed the Spammers have found us and fill up pages with links back to their "buy cheap drugs" sites etc. Seems somedays they are posting them faster than we can remove them. We are looking into ways to stop them but it might take a wee while. One option is to have every new entry approved by admin before they appear on the site.
'February 2006
Kirby Update
Kirby is slowly getting her pictures up. Kirby is a very photogenic Bear! To Jason and Terri - your pictures you sent us of your XMAS exploits with Kirby and the girls is in progress. I'm trying to come up with an efficient way to manage the gallery. Stay Tuned!
'Jan 2006
New Brochure!
We now have a brochure that can be downloaded. It is in PDF format.
'Jan 2006
Website Upgrade!
The website has completed its hosting upgrade and things seem to be working smoothly. Fingers Crossed.
'January 2006
Matt and young Logan Watts
We would like to welcome Matt Watts - our good friend over in the good ole USA whose son Logan is dealing with SMA Type 1
Matt is a prolific writer and issues a weekly newsletter on Logan and his families journey.
We've made Matt's Peanut Reports available at www.peanut.smaaustralia.com so we can all keep up with Logans progress.
He's also unknowingly testing out the script being used - shhhh don't tell him.
We are looking to make this feature available to members of the SMAAA on request who are going to be submitting many articles and pictures. It makes my life (Tim Brownlaw) much easier in maintaining lots of articles.
'January 2006
New Webhost
We have now changed over our webhosting to Bluehost.com.
We now have over 10 Gig of Hosting space plus lots of other features that will allow us to do everything we have planned for the future at a very affordable price.
CLICK HERE TO SIGNUP FOR BLUEHOST.COM. '
January 2006
SMAAA is now officially a Non Profit Organisation
Great News - The Spinal Muscular Atrophy Association of Australia Inc is an official Non Profit Organisation.
We have DGR Status - Deductible Gift Recipient - which means that those that donate $2 or over to the association can claim the donation as a tax deduction.
'
January 2006
Downloadable Brochure
There is a Brochure available for downloading. This will be in a different format and is what we'll be printing up and distributing
'January 2006
SMAAA Board Update
We now have 9 people on the Board who are all contributing to make the SMAAA what it is today. A big thankyou for all your efforts now and in the future.
'November 2005
Kirby Update
Kirby was off on one of her adventures attending a fundraiser. [Feb 2006 - pictures are now up on Kirbys page]
There is a story behind this which will be posted up during Feb 2006.
'3 October 2005
New Sponsor
We have a new sponsor on board - Setec , custom designers and manufacturers of power supplies.
We'd like to thank them for their support!
3 October 2005
Site update
The style sheets have been modified to make the printing of pages fit correctly.
So now you should be able to print off any of the articles etc from the site. All the graphics have been disabled so don't be alarmed if none of the pictures appear. That has been done intentionally for now.
'2 October 2005
Articles in Printable Format
Articles etc can now be printed from the site that are "printer friendly" without all the graphics, backgrounds etc.
There are still a few tweaks here and there that need addressing such as font sizes but it's functional.
'1 October 2005
To anyone that has visited our website in the past, you would have noticed that the site has had a facelift! We have been working hard to both make the site more interesting and to have more content. Some of the new pages added are as follows
- More about SMA in the About SMA page
- The Addition of the Kirby Bear Page
- Donations Page
- Media Releases Page
- And this one - the What's New page
Additional content has also been placed in the "Your stories" section.
You would have also noticed that we have a rotating banner for advertising for our sponsors and there will be an inclusion of a sponsor's page.
We appreciate the feedback that you have given in regards to the site.